saying: “Watch what you pray for; you may get it.” When Liz Gary was was pregnant with her third
child, she prayed that God would take her unborn baby before he was born. Her husband Mike and she had two adorable
children; six-year-old Abby-Lynn and four-year-old Cameron. They had room in their hearts for another child…but just not this one, or so Liz thought. Here is her story.
that the little boy I carried had Downs Syndrome with a heart defect and other
possible major anomalies. The news hit me like a sledge hammer. For some
reason, ever since I was a child, I had a deep fear that one day I would have a
Down’s child. I’m ashamed to admit it, but I feared Downs children and turned
away from them.
love for my poor disabled baby. I truly did love him. It was just beyond my
ability to cope, I thought. “Lord,
please take this little angel; this is more than I can handle,” I prayed. The
glow of motherhood turned into depression. I envisioned the birth of my baby as
the beginning of a life-long struggle–a child that would be dependent on me
the rest of my life.
weeks two different neonatal specialists told us that the baby was swelling
with fluid in major organs, a medical disorder called “non-immune
hydrops” that was “incompatible with life.” His body cavity was filled with fluid. His scalp, heart, lungs, chest, abdomen, kidneys
and scrotum were all filled with fluid. It was considered a fatal condition.
The ultrasound showed the fluid, and the testing (by amniocentesis) backed it
up. The expectation was that he would die in utero within a week or two. This
was what I had prayed for because I thought it was for the best.
brought to term, the experts believed he would not live for more than a few
minutes because the fluid buildup was so severe. The baby’s lungs were
compressed with fluid making it impossible to breathe on his own. The doctor
wanted us to deliver the baby early so as to relieve me of the burden. I told
the doctor that everything would be in God’s hands. We then waited for the baby
to die.
baby’s heart beat remained strong and his movement was constant, I wondered how
he could be dying. I could feel him in my womb constantly kicking and moving.
Then something began to happen that I had not anticipated. My baby became so
alive and real to me. I began to fall in love with him.
of which I was capable welled up within me and cried out for my baby. I loved
him so much and did not want him to die.
Was God taking my baby because I did not have faith enough and love
enough to believe I could care for him?
gladly accept the handicaps of my baby if only he would live. It was a wake-up call to the shallow faith I
had been practicing. My selfishness hindered love of God and love of others and
even love for my very own baby. For the first time in my life, I fully put
myself in God’s hands; whatever that meant. It was then that peace washed over
me. “God, you alone know what is best for our family and our baby,” I prayed. “I trust in You. Help that trust to
grow.” Now I was praying for two things:
a miracle that my baby would live or peace of mind to accept God’s will if he
did not.
St. Gerard |
During the last two
months, Mike and I made arrangements at a funeral home. In late August, two
weeks before the baby’s due date, I went into active labor. They put me in the
last delivery room, all the way at the end. Everyone knew what was going to
happen and they were ready for a heartbreaking night. Thankfully, I had one of
the most beautiful nurses who comforted me. She gave me a prayer card of St.
Gerard Majella, the patron saint of expectant mothers.
that they would only make the baby comfortable until he passed. I went into
emotional shutdown. I could not push because his birth would mean he would die.
I did not want to let go of him. I cried more in that hour than I have cried in
my lifetime. I prayed: Dear God, just
give me five minutes with him.'”
Raphael Gary, 7 pounds, 10 ounces – was born alive, kicking and screaming. Mike
baptized him immediately, thinking we might have only minutes with him. After
10 minutes of screaming and crying the baby looked pink. The only thing purple
was his hands and feet. I was expecting a baby who was dying. Then I heard a
gurgling sound. “Oh, this is it,” I thought.
But they syringed out the fluid and his eyes started opening and he started
rooting. I begged God, “Please don’t take this baby from me.”
Dustin with Mom & Dad 2014 |
Finally, we called for
a pediatrician to examine the baby. He looked at the file and then looked at
Dustin, then said: “This file and this child are not the same. There’s no way.
The file says he’s incompatible with life.”
fluid was in one of his kidneys and his scrotum. I believe God healed him from
the head down and stopped low enough to show that this wasn’t a mistake–this
was a miracle. He is a miracle. He would not be here if not for the grace of
God.
Dustin and big brother 2014 |
We chose the name
“Dustin” because it means “Fighter,” and
“Raphael” means “healed by God.” He became the light of our
family six months ago. Dustin has brought more love to us than we ever
imagined. He has changed everything in my own life: my ability to love, to
trust in God and to see miracles all around me.
was put here to bring us closer to God.
I am thirty-five and I have never known God like I know Him now. Even my mom, who is sixty-seven, says she’s
never seen the Lord like she seems him now.
I lived in a box before. Dustin has changed our world; he has brought
God into it.
March 2017 update. This story is from the book, Amazing Grace for the Catholic Heart. Dustin will be 13 years
old. According to Liz: “Dustin has given so much love, compassion, hope, perseverance, patience, determination to so many. His sister Abby-Lynn Gary and his brother Cameron Gary have been remarkable. What an honor it has been to walk this walk!” Because of Dustin, she has been very involved
in legislation at the state level in her home state of Louisiana for people
with disabilities.
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